Thank you for to those constituents who have contacted me about Dr Liam Fox’s Down Syndrome Bill.
I know that with appropriate help and support, most people with Down's syndrome lead healthy, active and more independent lives, achieving more than ever before. I do recognise, however, that those with Down's syndrome face significant challenges across all stages of life and it is right that the Government considers how to ensure their specific needs are recognised and considered.
The COVID-19 pandemic has further highlighted the need to improve access to services for people with Down's syndrome. The Down Syndrome Bill will require the Secretary of State to publish guidance to public bodies to ensure they are clear on how they should meet the needs of people with Down's syndrome. It will set out best practice across health, education social care and housing, giving practical advice on how the appropriate steps can be taken to meet the needs of those with Down's syndrome when planning, designing and delivering services.
It is especially welcome that the Government will consult widely on the proposed guidance, ensuring the voices of those with Down syndrome, their families and carers are heard, and that the guidance is fit for purpose. This, I believe, is essential.
Thank you again for taking the time to contact me.